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Gene therapy is saving children’s lives—but screening to discover who needs it is lagging behind

States in the US have been slow to test newborns for genetic conditions.
By Emily Mullin

Fifteen children born with a rare muscle-wasting disease would probably not be alive today if not for an experimental treatment that tweaked their genes shortly after they were born.

The disease, called spinal muscular atrophy, would likely have killed most of them by age two. Amazingly, many of the children…

Read more on technologyreview.com.

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